Patient & Community Educator – Missouri Territory
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Job Description
Patient & Community Educator supporting Prader-Willi syndrome education for caregivers and healthcare professionals. Collaborating across teams to enhance treatment adherence and disease understanding.
Responsibilities:
- Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
- Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
- Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
- Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
- Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
- Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
- Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
- Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
- Maintain timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
- MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate.
- Maintain documentation requirements for clinical licenses and clinical certification.
Requirements:
- Bachelor’s degree in nursing, dietetics, social work, allied health, and/or clinical background; advanced degree preferred.
- 5+ years of experience in the pharmaceutical/biotech industry; rare disease experience in specialty products preferred.
- Experience in the following specialties: Endocrinology, Rare Obesity/Hyperphagia, or Genetics.
- 3 + years’ experience in designing and/or providing patient/caregiver/consumer-oriented education, ideally in rare disease.
- Strong understanding of industry legal, regulatory, and compliance landscape.
- Excellent understanding of patient-literacy concepts and ability to communicate complex scientific/medical information in patient-friendly language.
- Fluent in English.
- Fluent in Spanish, highly preferred.
- Ability to work independently and collaboratively with a diverse cross functional team.
- Self-starter who is highly passionate about rare disease.
Benefits:
- Respect the privacy of patients and their caregivers/families and manage all personal information in accordance with all laws, regulations, and policies.
- Maintain disease-state and product expertise through continuing education and attendance at relevant symposia, conferences, and other educational opportunities.
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