Senior Community Engagement Manager, Sickle Cell
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Job Description
Senior Community Engagement Manager at Swoop focusing on sickle cell disease community and fostering patient connections. Leading engagement strategies and moderating discussions for meaningful support.
Responsibilities:
- Launch and Lead the SCD Community
- Serve as the primary community manager for our new sickle cell disease community — a visible, credible, and trusted presence from day one
- Set the tone for authentic, safe, and culturally fluent participation during the critical early months of launch
- Shape discussion topics, norms, and member experiences that reflect the real and complex realities of living with SCD
- Foster Meaningful Engagement
- Welcome new members and help create an environment where people feel comfortable participating and sharing
- Support ambassadors and highly engaged members who help strengthen trust, connection, and belonging within the community
- Create thoughtful prompts, polls, Q&As, educational discussions, and storytelling opportunities that encourage authentic conversation and practical peer support — covering SCD-specific topics like ER navigation, gene therapy access, fatigue, disability benefits, etc.
- Cultivate Safe and Supportive Community Experiences
- Moderate conversations to maintain a safe, respectful, and inclusive environment
- Navigate misinformation — including unproven treatments — with nuance and education rather than censorship, while maintaining evidence-based standards
- Help members discover trustworthy, evidence-informed resources while honoring the importance of lived experience and peer connection
- Advocate for Members
- Surface member insights, recurring challenges, and emerging themes to the Product, Editorial, Marketing, and Research teams
- Help internal partners better understand the emotional and practical realities members face beyond clinical symptoms alone
- Contribute ideas that improve how the Community, Email, Product, and Content experiences work together to better support members
- Support Community Growth and Health
- Manage a broader portfolio of health communities alongside your primary SCD focus
- Analyze engagement patterns and community trends to refine strategies and improve member connection
- Experiment thoughtfully with new engagement approaches while staying grounded in member needs and community safety
Requirements:
- 3+ years of experience building and managing online communities, patient communities, peer support spaces, or highly relationship-driven digital experiences
- Strong written and verbal communication skills with the ability to foster thoughtful, supportive, member-centered experiences
- A quick, empathetic, and thoughtful approach to member interactions
- Strong emotional intelligence and the ability to navigate sensitive conversations with care and professionalism
- Experience building trust with diverse communities and fostering inclusive participation
- Comfort collaborating cross-functionally with the Product, Content, Analytics, Marketing, and Community teams
Benefits:
- Best Places to Work recognition from Business Intelligence Group in 2025 and 2026
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